Matinum

Taking Charge of Your Health


“I was always a healthy person. Always in the gym. Still am, when I can. And anytime something came
up, I was apt to see a doctor because I always wanted to
make sure I was healthy. That’s the gold of life. That’s better than any wealth
you can have is your health.” “I had a lot of medical
professionals confused with my health condition.” “I was feeling like
severe headaches, severe migraines,
arthritis symptoms. I had a bilateral carpal
tunnel syndrome release, which was unsuccessful. So he sent me to a Lyme
disease specialist. ” “He felt that it
was Lyme disease. I did the treatments and he
was getting ready to put me on an intravenous pump for
antibiotic treatment and that’s when I started going
blind in my right eye. And that’s when I thought, ‘Well
maybe this ain’t Lyme disease, maybe this is something else.” “Come to find out, what I thought was Lyme
disease it wasn’t.” “I went to a neurologist and I
consulted with an eye surgeon and that’s when I went
for an MRI and they saw that I had a golf [ball] sized
tumor on my pituitary [gland], which was crushing both
hemispheres of the brain and was wrapping
around the optic nerve. ” “It kind of made
me feel disappointed because you would think
that a lot of people in these positions
would have grasped it or picked up on it sooner. But instead they felt that
it was all in my head. And come to find out it was
It was the size of a golf ball and it was a tumor
on the pituitary.” “They removed approximately
90% of the tumor and the medication
I’m on now helps to keep the growth
hormone levels in check. If I would have been diagnosed
sooner, I could have went on medication and shrunk it
all together without surgery.” “I wouldn’t want to
see someone else going through the same thing
that I’m going through. I mean, I’m still here. But there’s days when I can do
everything and anything and days where I can’t even
get out of bed and if I was diagnosed
sooner, I wouldn’t be going through what I’m
going through now.” “I have three children
and a wonderful wife and I’m lucky to be here still.” “It was a very trying time for
about 2-3 years with my children and my family and
naturally I couldn’t see it. But they could see it
and they could feel it. Now, looking back, hindsight,
I’m lucky that she’s still there and my family’s still
there with me. They stuck by me.” “People need to be a
little more knowledgeable about Lyme disease. Antibiotics is just
given out regularly and it’s just a fast, quick fix. And it needs to be
looked into further because other people
have diseases where antibiotics will
affect them even worse.” If treatment’s not working, there’s got to be
another cause.”>>If you have been treated for chronic Lyme disease and still do not feel better, please advocate for your health and get a second opinion.>>If you believe you have had untreated Lyme disease for months or years, please see an infectious
disease specialist who uses FDA-cleared,
fully validated tests.

100 thoughts on “Feeling Worse After Treatment? Maybe It’s Not Lyme Disease

  1. Why is the blame on the Lyme Dr. When the tumor was found while under his care? Also, isn't the blame on the other Dr's mentioned for not finding the tumor?did the patient have both, Lyme and a tumor? Was the tumor caused by Lyme? So many unanswered questions. Why is the CDC publishing such propaganda? Also, if long term antibiotics are so dangerous why are they given routinely and ong term for people with face acne? 

  2. Pathetic attempt to alter the realities of LD, but what else is new when it comes to the CDC and the IDSA's war against Lyme doctors and Lyme patients. The CDC is clearly staging this silly propaganda video since the December 2014 passing of the NY Lyme bill that protects doctors treating Lyme patients from being investigated and/or having their licenses revoked ever again – thank you to NY Governor Cuomo for the passing of that bill. The Lyme bill that will also help multitudes of Lyme patients finally receive a proper diagnosis and treatment. 
    The CDC is rendered scrambling as the # that THEY have estimated to be 300,000 cases of LD diagnosed a year will rise to a more accurate estimate of close to a million. The CDC and the IDSA war tactics are looking quite desperate and goofy….just saying.

    Enough is enough CDC! If you (CDC) would like to read some REAL Lyme stories check out Lyme Expressions And Fellowship – LEAF Facebook. https://www.facebook.com/lymeexpressions

  3. Pure propaganda! It's sad that my 16 year old daughter and I have chronic lyme and coinfections. Unfortunately I don't remember being bitten by a tick but I know exactly 2 times that my daughter did. I called the Dr both times and was told nothing needed to be done since there wasn't any rash. It breaks my heart that she could have been spared the suffering of this horrible disease.

  4. Is the CDC saying there is such thing as chronic Lyme disease? I wonder if his tumor was caused by Lyme disease? I have two personal friends with tumors on their brains. Both had Lyme disease. It took my last friend over 6 months to get a doctor to look at her brain and the tumor. Why because she has Lyme disease and they thought she was just crazy. Doctors don't listen to people with Lyme disease that's the real problem here. CDC maybe you should look into Lyme disease causing tumors.

  5. I was always a healthy person, always 100% well with my health, going to the gym regularly, I immediately goto a Doctor when ever I get ill or have any concern.  Yes severe joint pain, bi lateral carpal tunnel, fibromyalgia, chronic fatigue, brain fog, tingling, numbness, red eyes, insomnia, floaters, stiff neck.  I actually had Lyme and Bartonella infection, literally it was all in my head, a brain infection, but also in my skin, heart, joints, connective tissues.  The medication that I'm on now, helps keep it all in check (antibiotics).   If I would have got a diagnosis sooner 2 weeks after my infection, the infections would be treated and I wouldn't be on these long term antibiotics.  I wouldn't want someone else to go through the same thing I have been through.  There have been days where I couldn't get out of bed, and days that I can do anything and everything (with my medication).  And if I would have been diagnosed sooner, I wouldn't be going through what I'm going through right now (long term antibiotics).  Now looking back hind sight.  People need to be a little more knowledgable about Lyme disease and how it should be more recognized like AIDs if it becomes Chronic.  I have been treated for Chronic Lyme disease and I am feeling better, I am not going to STOP treating until it is in REMISSION otherwise it just comes back!  The FDA fully validated tests didn't work for me as I also have bartonella (shuts off immune systems production of antibodies), and anaplasma (infects and disables white blood cells).   Anyways, after checking myself into the ER just one week after my infection, and seeing 7 doctors there after.  Finally after 2 months I can finally see an LLMD, guess what!!! The whole system missed my early Lyme diagnosis!!! Which I was telling the DOCTORS!  

  6. True Maybe it's a brain tumor that was missed by your PCP and Neurologist and could have been found with an MRI.
    Robert to Doctor: I have headaches that are getting worse Doc you think maybe a CT or MRI would help.  Sure but if you do that you won't get to be in our special video 😉   http://nypost.com/2015/01/14/disease-uncontrolled-swift-decline-of-the-cdc/

  7. You guy's are doing a fine job, although the media blitz Prior to the passing of NY State Lyme bill didn't seem to work to well, it would seem that politically speaking we are the ones that are being heard! Perhaps one day you'll concentrate on the suffering as apposed to trashing us at every corner. Supposedly you guy's we're listening? I think you're listening to the wrong people! Remember the Hippocratic Oath? HELP US!!!

  8. Robert had a hard time getting rightly diagnosed and I wish him well. 

    However, if Robert's experience is the best case against the existence of chronic Lyme that the CDC can come up with than we shall prevail!  

    Dr. Jemsek says, "The lie is too big to confess." 

    That the CDC pushes politics and politics–with some dead Lyme patients being the result–is mass murder and it is attempted mass murder. Antibiotic combinations long term save our lives. What is wrong with that? We need to take antibiotics smartly. 

    An ill person with chronic Lyme who goes to see, as the CDC pushes, an infectious disease doctor, almost none of those docs in the US believes in chronic Lyme disease. They will deliberately make you worse with only a matter of weeks of one antibiotic at a low dose. When you're done, they'll say all of your signs and symptoms remaining are caused by something else–not chronic Lyme. Sooner or later, Lyme will haul back worse than before. That's profits before patients.

    An executive at the CDC calls us "Lyme Loonies." However, that is discrimination against the disabled. 

    It's time to drop out, CDC. 

  9. Have to add additional comment- I followed the protocol for Lyme- I found the tick, and pulled the engorged tick and had a bullseye. Within 24 hours of infection (bite), I had the prescribed treatment for THREE WEEKS (Doxy). Immediately after the three weeks of treatment, I had a fever. Three weeks after treatment I couldn't walk. I mean I was walking and mid dog walk- I could no longer move my legs. I got the name of a Lyme Literate Medical Doctor and received 4 months of Antibiotics, anti parasitics, etc. I still had a great deal of pain while walking, my scalp felt like it was on fire, my joints hurt, and I couldn't think straight. Every day for 2 years, I'd drive my kid to the same school and in the thick of fighting Lyme, I panicked when I came to a stop sign and literally had no idea which way to turn. It is a VERY difficult disease to manage, and each of us have different symptoms and different experiences. While I don't think anyone owes me a cure, I do think that if I there was a better protocol for treatment, I would not have suffered as much as I have. I'm one of the lucky ones who discovered the tick, bullseye, etc. and I'm still having huge difficulties managing the disease, swelling in my hands and feet and legs, cramps, thumbs that don't work, headaches, etc.

  10. This case is irrelevant to lyme disease. It had everything to do with malpractice though. My llmd ruled out EVERYTHING else before he would even consider lyme and co's regardless of the fact that I got sick after a tick bite. Everything from sinusitis to brain tumor to cancers.

  11. This is nothing more than a shameful propaganda campaign against Lyme Literate Medical Doctors (LLMDs) and an effort to promote the IDSA's flawed agenda.  Robert's n=1 scenario is more about a case of medical malpractice by his neurologist and potentially other medical care providers.  While Robert may be suffering from some ongoing deficits (which may or may not have been present with a more timely diagnosis), there are countless others who are debilitated due to delays in diagnosis of Lyme or ineffective treatment.  What about those young, otherwise healthy people who suffer from deadly symptoms of Lyme and other tick-borne infections?  There are unfortunate consequences when medical conditions are not accurately diagnosed.

    Perhaps if the CDC was actually doing its job, we would have more accurate diagnostic tests. The "FDA cleared fully validated tests" pushed in the video rely upon decades old technology and miss approximately 1/2 of actual cases pursuant to numerous peer reviewed studies.  In early infection, when treatment is most effective, CDC recommended tests miss up to 70% of actual cases.  Without a sufficiently sensitive and reliable test for Lyme Disease, it is impossible to determine with certainty who has an active infection verses past exposure.  Notwithstanding the unreliability of CDC approved tests, the CDC and FDA have recently taken steps to limit access to more sensitive testing, further compounding the problem.  Tick-borne co-infections are also frequently missed using currently available laboratory tests further diminishing the chances of a successful treatment regimen.  What exactly is the CDC doing to fix these decades old problems?

    While the CDC estimates that up to 20% of patients will suffer persistent symptoms after standard Lyme treatment, in a study by researchers at Johns Hopkins University, the treatment failure rate for early Lyme disease was estimated to be as high as 36%. Other studies have shown that with late Lyme disease, treatment failure rates may exceed 50%.

    In recent studies conducted by the CDC, doctors reported using a longer duration than recommended by the IDSA 61% of the time, suggesting that such recommended treatments are simply not effective.  Moreover, there is a growing body of research demonstrating persistent infection after antibiotic treatment.  Lyme patients desperately need more effective treatment options.

    Rather than addressing these serious concerns, the CDC has instead engaged in a propaganda campaign.  It is time to put aside the agendas, dogma, and presumptions about Lyme Disease and actually DO SOMETHING to help the hundreds of thousands who are suffering due to the CDC's nonfeasance (if not malfeasance).  

  12. Dear CDC I will pray every night that you & your families get Lyme.  I will pray that the millions that now suffer meet you at your doorstep & fling ticks at you & your families. Only then will you realize what Lyme really is & what horrors you have brought upon the human race!!!

  13. In medical school, doctors are taught "when you hear hoofbeats, think horses, not zebras." According to the American Cancer Society, 10,000 cases of pituitary tumor are diagnosed in the US each year. Almost all of these tumors are benign pituitary adenomas. Very few pituitary tumors are cancers (carcinomas).
    The CDC estimates 300,000 cases of Lyme disease in the US annually.
    MORE doctors, not less, should consider Lyme in the differential diagnosis for many different symptom sets.

  14. I think it's probably just something simple to treat like  MS, ALS, Alzheimers, Autism, Lupus, Parkinson's, Diabetes, Crohns, Celiac, Arthritis', Osteoporosis, MD, ALD, ME, GWS, PTSD, ADHD, Kawasai's, Down's, or one of them other bizarre syndromes. But you never know…Pit Adenoma's are so common these days!

  15. All of you people DO realize what the CDC thinks of us all.. right? As per anything "Government related" their move is always to deny something that has happened.. and then mock the people who know better. Our Government has been lying to us for a very long time.. and about everything.. from the diseases they created to our own history. They call us "Lyme Loonies".. http://www.poughkeepsiejournal.com/story/news/health/lyme-disease/2014/03/26/so-called-lyme-wars/6907209/ . 
      And, for those of you who actually believe there is not an accurate blood test for Lyme, you should know Dr Lida Mattman who worked for Yale took my first blood test by simply putting it under an electron microscope and using her eye to SEE it. Anyone who knows what bacteria looks like is qualified to do this. She saw a high load of the Lyme spirochete along with a very high load of Babesiosis. According to MY local Doctors, I was dying of "ALS". I am here 18 years later thanks to the Lyme Dr who treated me for years. Imagine the look on my local Infectious disease Drs face when I presented those pictures as my evidence… Dr Mattman thought she was working for the better of humanity.. to save everyone. I had many, many interesting conversations with her through those years before she died.. Take a few minutes when you all have time to look her up. Know how deep this lie goes. Crimes against humanity.

  16. God I love how those of us that have fought and fought for treatment are still being denied because of factious statements as these. I have to travel out of state to even get treatment. Yet according to this video he makes it seem like all Drs are willing to treat and dole out antibiotics like candy. Sr. I'm happy you found a solution to your problem. But when those of us have been tested by and for everything under the sun… It's nothing else but lyme. In my situation I tested positive under Labcorp standards by my Pcp after everything else was considered. Given a 2 week course of antibiotics and started feeling better. But by the time they final diagnosed me from my start of symptoms it was 6 months. That was in 2003, in 2006 I tested positive with five bands present on the IgM. With the help of a wonderful lyme doctor I went into remission in 08. Being in my home state of NC and assuming my Lyme was gone, I started feeling back to normal again until one day I passed out. Then electrical sensations started, tons of test later to find out the Lyme had returned with neurological damage. All we want is to be treated with dignity and respect like every other patient that has a disease. Instead we are told you can't possible have Lyme, we don't have Lyme in southern states. We want to be treated by physicians that are not afraid to treat us without being punished by medical boards. We want insurance companies to cover and recognize our treatments and pay for them.

  17. I love how at the end it says "Saving lives. Protecting people." I completely disagree with that. How can you be doing either by putting out messages to try to scare or intimidate people? Even with a POSITIVE western blot and ELISA (295x HIGHER than supposed to be) And many bands positive, I was given the standard 3 week doxy and told it was a false positive but they were going to give it to me any way. The antibiotics HELPED. Now I get no help, no treatment and my symptoms are getting worse again. THE SAME SYMPTOMS. Because of you Im losing my life. Walk a day in my shoes, on a day that I can walk, and tell me that there is no such thing as chronic lyme or that antibiotics dont help. Those 3 weeks were the most relief I felt from my symptoms and now its all back. Thank you for being selfish and protecting yourselves instead of helping and protecting the very people you are supposed to help. Its all about money. Nothing else

  18. Robert, I hope you are reading these comments here, because they are not only for us in general, but also for you! Your symptoms of joint pain/stiffness, memory loss and numbness and tingling do not come from a pit tumor! Those particular symptoms can come from Lyme disease! The bacteria do a number on the HPA axis – hypothalamus/pituitary/adrenal axis – they mess up all our brain systems. Listen, I had brain surgery for what they thought was a pituitary tumor, since my prolactin hormone was skyhigh. But, unlike your story, I didn't, and the surgeon said he didn't understand me. Ok, so yours was a tumor, and mine wasn't. But Lyme messes with this whole system, so who's to say that your tumor wasn't caused by Lyme? This video makes no sense, because it jumps to conclusions it can't make!

    Next, a good Lyme doctor could give a patient a differential diagnosis, as in why don't you go have xyz checked out.

    Next, this video ends with a request for people to go see an ID doctor for verifiable testing for Lyme disease. Hardly. ID doctors don't recognize, adequately test for nor treat the condition. The two-tier testing they use misses most people, because the first test, the ELISA test, is a crapshoot. As compared with the screening test for AIDS which can catch 95% of cases. The second test, the Western Blot antibody test, even when done by a good lab like IGeneX, can still miss cases – there are 27 reasons for why the Western Blot could miss a Lyme bacterial diagnosis. There is a good antigen test through Advanced Labs in PA and it's expensive – it costs $600, and what if the bacteria aren't in the blood sample?! $600 down the drain. Therefore, Lyme disease and co-infections are often clinical diagnoses. Many times the patient tests positive after receiving some treatment.

    And yes, antibiotics can be helpful to us, and so can a lot of other kinds of treatments. This video is much too simplistic even in its statements about how we all treat Lyme.

  19. Here is science of the CDC when it comes to Lyme : Robert was misdiagnosed with Chronic Lyme disease, so this is supposed to be the case for all other people with the same diagnosis? At the opposite how many people with Lyme where misdiagnosed with fibromyaligia, depression, or chronic fatigue for instance? Once again this is just misinformation and propaganda.
    There is also no information about how Lyme was tested : either it was not done or negative and it is malpractice because a brain scan or MRI was needed, or it was positive and it may had been Lyme AND tumor! And what about the uselesss bilateral carpal tunnel syndrome release ?
    I'm very sorry for what happened to Robert. But his personal opinion about Lyme is useless because maybe he neither had this disease nor he is a doctor. "and it's just a fast, quick fix" : lesson learned from the CDC-IDSA couple of course.
    The only good advice in this video is to get a second opinion, which most Lyme sufferers have done of course!
    CDC, please  realize you won't be able to ignore this public health problem endlessly!

  20. Also…  He went blind in his right eye after going on IV antibiotics.  I think that is a herxheimer with a powerful die-off.  That happens if Lyme patients don't start treatment slowly and go right to IV antibiotics.  There are reports of people dieing from a herxheimer if they were sick for awhile and right on IV abx.  

  21. Oh come on CDC.  What about all the people who go years before they are diagnosed with lyme.  My daughter starting having symptoms when she was 8 and she was not diagnosed until she was 22.  By that time the lyme had done a lot of damage.  She is finally being treated for chronic lyme and is getting better but because of all the times she was misdiagnosed she still has a long way to go and may never be 100%,  LOOK AT THE FACTS; CHRONIC LYME EXISTS

  22. Dear CDC,
         I am deeply saddened that you are unable to see that Chronic Lyme's Disease is an epidemic and that people are suffering immensely, and needlessly.
         I have had Chronic Lyme's disease for more than ten years, and was just recently diagnosed. My labs read positive for Lyme's Disease on the Western Blot test and the iSpot test. I received a notice from the CDC after my tests, requesting health information. I did not experience a bulls eye rash, but I do have Lyme's Disease and a laundry list of symptoms.
         After more than ten years of immune and neurological issues, in addition to headaches, pain and fatigue, I began an antibiotic regimen.
         The effects have been amazing! I feel best when I am given IV antibiotics. My symptoms virtually disappear the day I am given the IV antibiotics. They return a couple days after, and fade with the next IV.
         Are you familiar with Ignaz Semmelweis? He is the Hungarian Doctor who accurately theorized that doctors disinfecting their hands and instruments could prevent women and children from death by childbed fever.
         His findings conflicted with the scientific and medical opinions of that time, and his ideas were rejected by the medical community. Some doctors were offended by the suggestion that they should wash their hands. Imagine a Doctor not washing his/her hands in a hospital today!
         Holding on to the out-dated view that Chronic Lyme doesn't exist is causing needless suffering for thousands.
         I implore you to stop resisting the idea that Chronic Lyme does not subsist and re-focus your energy towards helping patients heal from this terrible disease.  A Lyme Literate Naturopath diagnosed me and saved my life. The ILADS treatment guidelines have helped me re-claim my health, and I am eternally grateful.
    I call upon you to be a part of the cure for Chronic Lyme, one patient at a time. You are sorely needed.
    Thank you.

  23. This is an irresponsible video.  Shame on CDC, once again.

    LymeDisease.org says:

    http://lymedisease.org/news/touchedbylyme/cdc-youtube-video-lyme.html?utm_source=Latest+Lyme+news+Jan+2015&utm_campaign=Lyme+insurance–news+update&utm_medium=email

    "The CDC’s chronic Lyme denialists just want to lay the blame on the Lyme doctor. Period. They don’t want to muddy their message by pointing out that misdiagnosis of ANY condition can have serious implications, whether you actually have brain cancer, a duodenal ulcer….or Lyme disease..

    At the end of the video, the viewer is told that if you believe you might have chronic Lyme disease, “See an infectious disease specialist who uses FDA-cleared, fully validated tests.” (Yeah, you know the ones. Like the FDA-approved ELISA test that’s been demonstrated to miss as many Lyme cases as it finds. Click here to read more about how the FDA wants to restrict your ability to be tested for Lyme disease.)

    If the CDC really wanted to reduce the number of people diagnosed with chronic Lyme, they ought to make it easier for people to get properly diagnosed and treated for acute Lyme—before it has a chance to turn chronic. How about a YouTube video about that?

    Once again, we are left to ponder this question: Why does the agency charged with protecting our health instead spend so much time and effort trying to undermine it?"

  24. This video is misleading. In almost every case Lyme Disease is misdiagnosed as some other illness not the other way around. Why not make a public video about that, CDC.

  25. Shame on the CDC, the IDSA, the insurance companies and all those responsible for lobbying against our health!!! Maybe they should receive some poppy seed sized mind changers…

  26. I was just diagnosed with Lyme disease, in Ontario, Canada. I was diagnosed with Guillain Barre in 2001, Graves disease(thyroid cancer) in 20016, Fibromyalgia in 2012. I would not give up that there was something else going on.  My symptoms are more in line with Lyme than Fibro as i continuously was getting worse and there were more symptoms.  Sometimes it is so bad, like the last 2 weeks, I am bedridden and wanting to die.  This is disgusting and inhumane.  These are the people who are supposed to be helping us not hurting us…shame on you.

  27. So he had Cushings? Sounds like a pituitary adenoma. I'm beginning to think that we should do away with the "family doctor" concept and replace them with Family Nurse Practitioners. The FNP will be charged with keeping the patient until such time as the patient is healthy. None of this, "blah blah will follow up" which never happens. The good thing about this system is that the FNP who is most successful is the one that can keep a patient load of healthy persons as well as ones who have undiagnosed illnesses. These patients are so sick that they can no longer go from one doctor to another without a person or system that can review the successes and failures and connect the dots. The family doc was supposed to do this. They don't. Since we have taken away their ability to practice medicine and turned them in to referral central. 

  28. I found numerous studies linking lyme disease to problems with thyroid, parathyroid, and the pituitary gland amongst all organs in the human body.  Studies show that pseudo tumors of pituitary gland and lyme disease are also noted.  I guess there would have been NO testing done of the cyst specifically looking for borrelia.  So typical of CDC take one story and deem it the whole population of chronic suffers. How about subjectively looking at the CDC positive people who continue to be sick and figure it out.  Some where there has to be an answer.  Denial of the obvious will continue this treacherous path for the current sufferers and the future people who find themeselves in the middle of this nightmare.

  29. OMG how do you sleep at night. NEWS FLASH CDC, when a Lyme Disease patient is FINALLY treated with antibiotics, of course within your magical 24 day protocol, the spirochete hide in the red blood cells and build a barrier, so the antibiotics are unable to attack them.  Once you are taken off the antibiotics, a few days later, you are hit with a major flare-up, as the spirochetes come rushing back into your blood system, oh but you know this already.  And your 24 day magical protocol, that magically cures all Lyme Disease patients, is such a farce and YOU know it. So, then we hear "oh long term antibiotics are terrible for the human body".   Well dear CDC is not chemotherapy horrific on the human body, but thank God, cancer patients are not subjected to your unethical cruelty.  Thank you for letting us Lyme Disease patients suffer so much.  Would you like to see my MRI's?  Guess what, by YOUR testing protocols, for Lyme Disease, my test results, still show "Active Lyme Disease", and have the bands that YOU say are necessary, in order to be diagnosed for Lyme.  However, I am done with the whole Lyme journey.  Not only are you responsible for all the suffering that we go through, sadly children too, but um, you are making this far more costly than it ever needs to be. Then you have all of these "outsiders", taking advantage of Lyme Disease patients, with their nonsense treatment.  Deep Gratitude, for the pain that I suffer with 24/7, that takes a toll on my body organs.  Start doing the RIGHT and ETHICAL thing.   

  30. What does any of this have to do with treatment for Lyme Disease?  Why didn't the first series of doctors find the tumor?  Some people think that surgery is a quick fix also…until they realize that they may not have needed surgery after all.  It goes both ways.  What this video doesn't address is the tremendous number of true cases of Lyme Disease that the CDC's 'approved & validated' tests don't catch due to false negatives.  One of the first things I had when certain neurological symptoms (i.e., 'numbness and tingling in both hands') became apparent was an MRI (thinking nerve issues might be due to MS, a common misdiagnosis), why didn't he?  This would have caught the tumor.  I have taken long-term antibiotics for Lyme (nearly 2 years all told) and the only thing I've noticed as a side effect is relief from a variety of symptoms.  It's a tricky disease to diagnose due to symptoms that overlap with a variety of other conditions.  A wise doctor will do his due diligence in differential diagnosis against other possible conditions and narrow down the possibilities through a process of elimination while starting a short term course of abx 'just in case', which is not harmful.  This guy had a series of docs who didn't do their jobs right and put this guy in harms way.  Someone please explain the BS argument that long-term abx caused the trouble that this man is now experiencing.  Let's do a side-by-side comparison of the ridiculous number of non-abx prescription drug related injuries and deaths in this country with those caused by abx.  No contest.  The CDC is a joke.

  31. You  have GOT to be kidding!!! The CDC itSELF admitted in 2013 that instead of the measly 30K or so cases of Lyme reported, they knew that number was closer to TEN times this…300 THOUSAND NEW cases per year. What that tells us is that they admit that about 90% are being missed. They then discuss the staging of Lyme disease and what CAN happen if the disease goes untreated. THEN they go on to report that even after their often "too little too late" treatment ( based on the sorely outdated treatment guidelines endorsed by the CDC written by Infectious Disease doctors in the US.) that 10 to 20% of those treated will not be "cured"…left with residual symptoms and damage from the bacteria. Add this to the fact that the testing is not accurate, has a very short testing  "window of opportunity" of only about a month (must be several weeks after transmission and cant wait TOO Long where antibodies start to lessen) and missing hundreds of thousands of Lyme diseased people.  So although THIS  doc may have missed the boat on detecting a tumor, this is but  ONE drop, ONE misdiagnosed person… compared to the OCEAN full of people suffering with destructive and disabling Lyme and related pathogens that virtually are eating bodies from the inside out and those cases are being MISSED because of misled medicine. And what about the cases of young people who HAVE died of heart block or other Lyme related medical maladies because their diagnosis was missed completely? What about the people who are chronically ill and set on  a shelf for decades, told they have CFS or Fibromylgia or some other mystery disease that has no proof?. Or better yet, told they may have some sort of psych illness that ALSO has no proof or marker? And they are neglected and told "there is no answer, no treatment, no cure…just deal with it.  And what if those people HAD markers of Lyme, but the CDC testing for proof of illness is so obscure and full of red tape and jumping hoops…that thousands upon thousands of people find out months or years later that it was LYME ALL THE TIME!? CDC…you  are so off the mark here. THIS is the mark of a subspecialty of medicine, The Infectious Disease Doctors of America,k  who are  whining and having tantrums because a group of doctors have taken their reigns away from them and actually want to try to get this right. It's about their egos and their "business' being sidelined while doctors that CARE and know the truth are trying to save those MISSED 90% out there whom our government health agencies have just decided to ignore. PLUS the 10 to 20 % of  (under) treated Lyme patients who are damaged and are just told sorry…nothing we can do. Just think of those numbers. 300K + every. single. year. Do the math CDC. You pluck one or a few cases out to showcase as misdiagnosed and neglect the sick who are becoming disabled by the very disease you say is endemic and missed. God help our country. Money and ego has taken the word human from humanity and has taken CARE out of medical care. Doctors are fighting over the "rights" to a disease. Managed care has taken humans apart and owned by specialties. It used to be that MDs were taught all facets of medicine. Now the rules have them unable to diagnose and treat. Shame on the CDC and those bullies that are trying to manhandle and brainwash by use of Youtube or via other media. Speak the truth and do this right or move over and let others fix this. 

  32. Wow! What total crap propaganda. Look up herxheimer. Symptoms get worse before they get better for most people. Severe disease requires long treatment. Science has shown that the bacteria lives despite the recommended treatment length (based on zero science).

  33. He is a case that had other causes…., but in our state he would have had MRIs way before he was ever diagnosed with Lyme disease!!!!! 

  34. Thank you for your suggestion to find a FDA fully validated Infectious Disease specialist if you still have problems.  It's been 15 years for me of coming and going symptoms.  I did go to our Calvert County Maryland infectious disease specialist and he did treat me for a month or two.  I finally improved greatly when I was treated for a co-infection Babesia.  But he (and his associates) will not accept any more Lyme Patients.  He's afraid of losing his license.  I guess investigators scrutinize practices for using long term antibiotics?  He says this has happened to other Drs. throughout the country.  I wonder if some Drs. want to help but feel bound by medical protocols that say they can treat according to our symptoms but then they possibly get investigated and/or shut down?   Is this true?   I heard New York State passed a law to prevent Drs. from being investigated and shut down.   
     I've had MRI's, Xray's, rheumatologists, EKG's, EEG's, Tilt tests for syncope, carpal tunnel surgery, eye doctors, brain scans, neurologist full testing, Physical Therapy over and over again, Colonoscopy, Blood tests over and over again, Dentists, etc.  So I think I have and continue to check out all possibilities.   Do you have any suggestions for me since our FDA fully validated Infectious disease Dr. will not treat Lyme patients?  Should I try traveling to New York?

  35. Why, why why?!!! The CDC spends more wasted time and money defending it's eroding posture against it's unethical, inhumane and statistically invalid stance that late stage chronic Lyme disease does not exist. What a sleazy and desperate video. Too bad there isn't a middle finger instead of a thumbs down. Yeah, I'm ANGRY- we finally are gaining traction with the Take A Bite Out of Lyme Challenge and Avril Lavigne is on the cover of People BUT the learn more link goes to the CDC page which features this ignorant and misleading "New" video. ARGHHH!

  36. Shocked and at the end all I have to say… CDC you should be ashamed of yourselves. Funny how I was Pre-MS until getting correct lyme treatment. The best part of you doing   your part to make sure lyme patients were persecuted against was that you almost killed  both my daughters. You stole over half of both their lives and unless you do you your part I hope none of you are religious because you have persecuted and stole the lives of millions and I would hate to see what waits you on the other side. 

  37. CDC is just wrong!!! Every lyme doctor that i have seen and my friends have seen ,one of the first things they do is make sure nothing else is going on along with the lyme disease ,via CT,MRI ect.. CDC once again just trying to discredit Chronic Lyme Disease. 

  38. The tendency in Sonoma County is to ignore all possibility of tick-borne diseases (7 and counting transmitted by Ixodes pacificus) until way too late.  Half of all CA lyme in dogs are found in Sonoma County (per Companion Animal Parasite Council).  We have a lot of lyme here. The chance of your tick-borne disease being misdiagnosed as something (anything!) else is far, far greater than the chance your Lyme is really a misdiagnosed tumor.  This article is a sham and should never have been posted on this page.

  39. The video states to only use the FDA cleared fully validated tests.. The CDC even admitted that those "fully validated" tests are no better than a coin toss! They are extremely inaccurate. Not everyone gets better with the antibiotics, as they are not a cure, or the answer to this disease..Once Lyme disease has gone chronic a person will have it forever..A person can't eradicate this bacteria out of the body if left to spread. There is the Embers study (look it up) and other peer reviewed studies which are proof to that.  There is no such thing as "post treatment lyme disease syndrome" and there is no proof or studies to back up this theory..They simply say cause this syndrome is unknown….more like the lyme bacteria never leaves the body..There are NO tests proving that anyone has ever been cured from Lyme disease with the IDSA treatment guidelines. In fact, many people with lyme have been on several different long term antibiotic regimens and still will have a positive CULTURE test…THIS IS OBVIOUS THAT THIS BACTERIA IS NOT BEING KILLED OFF WITH ANTIBIOTICS…There are so many lies and corruption surrounding this disease. This madness must stop!  WE NEED A CURE THIS DISEASE IS MISERABLE AND DEBILITATION! The symptoms of Lyme can be a mile long….PS- Lyme is everywhere, even in Idaho.

  40. CDC, if you are serious and responsible people, you ALSO need to inform people that feeling worse after treatment might not always suggest that it´s not lyme disease but that it could simply mean that the infection has not been cleared. You know this just as well as unbiased research does, but for some reason you seem very selective and biased in your information – the exact opposite of what your purpose is.

  41. I appreciated Michelle Trostler's comments, since someone I know was first misdiagnosed at the Leheigh Clinic (they said the symptoms were gall bladder and badgered her and her parents about what they had already concluded was heavy drinking).  When the issue of Lyme disease came up, they at first dismissed it, suggesting that a gall bladder removal was called for, and that delay could be devastating.  No gall bladder removal was scheduled and Lyme disease was found.

    OTH, there was no way to know how long it had been in the system, and the 30 day treatment now (several years later) appears to have been inadequate.  Here, again, Michelle's comment are quite germane.  We have just watched a classic "fob off" a medical "bait and switch", in which someone sincerely describing his symptoms and diagnosis is fed to us as a useful alternative.  "Brain tumor"?  An everyday alternative to Lyme? Get real.

    Frankly, differential diagnosis is what distinguishes great doctors from pill pushers, and it is beyond irritating to have the CDC misuse its supposed deep knowledge as this video does.

  42. It is so laughable how the CDC can continue to ignore the obvious and, refuse to further reasearch the truth.  Lyme is killing me.  I am in a wheelchair at 33 and, gravely ill.  It is my guess that it would cost our country less if they would simply do the ethical thing by reasearching further into chronic lyme and not refusing to except that this illness is really very common, and often chronic, and difficult to treat and serious.  I went from working full time to then needing nursing care and, am not able to function.  If we could educate the doctors and find a better way to test and treat for this, we can overcome this horrific and debilitating disease.  Shame on the CDC for their LIES.  I hope they get LYME!!! Then, they will know the pain and suffering and things will change.

  43. Don't worry the CDC knows everything. After all, they were the ones that told everyone, at the top of the hype of the Ebola thing, not to worry about going on public transportation because you couldn't get Ebola from there. BUT, if you had Ebola, not to take public transportation because you could transmit it.  Huh? If no one on the bus can catch it, who exactly would you transmit it to?! Say what?! TOTAL UTTER CRAP.

  44. I've heard about a new ultraviolet machine called the UVLRx that's being used for Lyme patients. It uses a fiber optic thread which is inserted directly into the vein and the treatment lasts for an hour, so all the blood is treated. Has anyone tried this?

  45. I like how people who claim that Chronic Lyme Disease exists ignore the double-blind placebo-based peer-reviewed literature showing that long-term antibiotic use does not outperform a placebo. I tested positive for Lyme Disease and I will take evidence-based medicine any day.

  46. Wow how pathetically convenient. Asked my cardiologist to go forward with research on how to mend & heal these people's hearts at the CDC. I then realized even a heart surgeon wouldn't be able to come up with any treatment to fix the hearts of people at this organization BECAUSE no-one can fix what's not there. They don't even have a heart. Hmph.
    FYI, our Llmd's check all of these things before and throughout treatments. Not to mention the evidence now that Lyme can induce tumors. My support group leader had a tumor removed & sent it to a pathology lab. It was filled w/Borrelia spirochetes from the Coinfection Protomozoa Rheumatica. I think I'll choose to let this video be of humor to me in this so epic timeline!

  47. Obviously it is important to rule other things out as part of diagnosis. Lyme testing is still unreliable. So doctors need the whole picture. In my case, doctors and testing ruled out everything from a brain tumor to MS before coming to the Lyme diagnosis. And now antibiotic treatment has gotten my life back — I'm so grateful not to be bedridden any longer. And I hope accurate testing is coming soon.

  48. Oh wow, my mother had a pituitary tumor that was around 1980 and her Philadelphia neurologist was Dr. Lin. He was the best. Messed up my mother's life. Can't explain my symptoms either.

  49. before you read this, you all need to stop fighting over these things, it is not going to resolve anything, it is only going to show that some people don't believe in some practices, and if we are going to do something about this, we have to do it OURSELVES!

    why let people get too us if it is not going to help anyone

    lymes disease is a problem that MUST be resolved. but RESOLVING DOES NOT MEAN ARGUING.

    i have lymes, and every day for the past week, which is not very long for those of you with lymes out there, i have been having joint pains to the point of me crying, which hasn't happened for two years, it was one of the scariest things i had ever felt both the time i originally had the pains and couldn't move my legs and the time i knew it had come back.
    i am fourteen now, and am still scared of what could still happen.

  50. Have had numerous health issues for 10 years. Thyroid issues, Hashimoto's also at risk for Huntington's Disease. 7 years ago developed tingling in extremities and lips, strange sensations, feeling achey and flu like all the time, and a host of other symptoms and poor balance eventually. I suspected Lyme for the last 5 years but when you are at risk for HD that is all a doctor sees. "Get tested!" The #1 symptom of HD they are taught is denial, so they won't even listen when you believe your symptoms don't quite match up. Testing is a slippery slope. Need to have all your ducks ( life insurance, long-term disability insurance, long-term care insurance and me emotionally and socially ready for results) before you get tested. Genetic counseling is usually required before they test. At any rate a got my relatively new doc to test for Lyme and it came back positive. Starting on Doxycycline today. Don't know if this will be effective since I have had this for 7 years. I did not get to ask the doc questions as she is out of office for a bit and another doc took results and prescribed the Doxy and just left a message to pick it up. Hope this is a start of getting better.

  51. Finally….a bill passed in senate. After years of suffering, may we all get an EDUCATED panel who understands CHRONIC LYME. Along with the suffering, denial of long term treatment is a slap in the face! Anyone who believes this BS…..Will only open their mind if they, themselves get it or a loved one. Shame on you!

  52. Dummies, all of us with Lyme disease check for tumors before we get diagnosed with Lyme. When you don't have tumors, and still have all the symptoms of Lyme disease, then criminal conventional medicine calls you crazy. All thier tests don't work and you are still so very sick. Hate this stupid video. An infections disease doctor will send you away when you have Lyme disease. Sick video intended to keep people sick and call them crazy.

  53. I can't believe the CDC released this! The CDC's tests on Lyme is giving false negatives to THOUSANDS of people with Lyme!!! These people need treatment! And even if you're diagnosed, because the CDC says you still don't have it, insurance won't cover it… it's a real nightmare. Literally thousands of lives are being ruined because of the CDC. And then they release this?!? This video is such an illogical fallacy it blows my mind… I smell corruption

  54. Yes, we saw an infectious disease doctor for our very sick son. He treated him for 30 days then pulled the piccline. Four months later he relapsed. When I called the ID doctors office, they refused to see him again. By the way, it has been found that many tumors and cancers have an infectious cause. More and more people are getting Lyme and have been to over 50 doctors still not getting help. It was a Lyme literate doctor trained by ILADS who saved his life. The CDC needs to wake up and start listening. You are treating us just like how AIDS patients were treated years ago. Maybe you need to open your ears instead of your mouth. Listen to your patients!!!

  55. Chronic Lyme disease is real. The IDSA's guidelines have been REMOVED from the National Guidelines Clearinghouse, which is the body that governs medical treatment protocols in the United States, because the IDSA was investigated for conflicts of interest and their data was bogus, and they were given a timeline to clear it up but they never delivered! You know who's guidelines remain? ILADS. The group of physicians and researchers who assert the chronic nature of Lyme disease and it's ability to persist after antibiotics based on over 700 peer reviewed papers. This information is obsolete and inaccurate and it's very irresponsible and criminal of the CDC. 2 seconds ago•

  56. Is this a joke?? I was tested for everything under the sun. Lyme is the only thing that was positive. And I've spent the entire last year going thru alternative treatment and learned how to walk again. I would never wish this upon anyone but maybe if one of the CDC members lived or witnessed it first hand they'd have a different opinion. Maybe this has something to do with Plum Island?? Interesting government systems we have.

  57. My thought is that the MDs should have done a brain MRI w/ neuro symptoms to rule out/in other issues. This isn't a Lyme treatment problem, this is a lack of investigation before settling on a diagnosis. Yet – It's presence on the CDC website politicizes the controversy that is ever present in the 'Lyme world.' Let's see it for what it is.

    Any good RN and MD knows that diagnoses are never set in stone and should always be re-evaluated based on emergence of new or old symptoms and response to treatment.. There is no quick fix w/ Lyme Disease and antibiotics are most certainly not given out easily and liberally. It breaks my heart that this is on the CDC website when the misdiagnosis of this gentleman was related to physicians who didn't evaluate their patient fully before diagnosing. Instead it appears to be used by the CDC to denounce the many approaches to lyme treatment when someone may actually has the disease.

    FDA approved tests… that's not the solution. The solution is making sure all Western Blot bands are checked for in those who have never had the vaccine. Many bands were removed form the panel b/c vaccine recipients would show positive. That leaves ppl. w/ less chance of diagnoses because SOME people had a vaccine removed from the market. (How about a check box on a lab slip. If you and the vaccine, the WB bands that react should not be considered in determination of a positive test. If that box is not checked, the WB bands are all included in the test result. Seems simple to me.)

    The solution is understanding the science behind treatment studies and the bias that exists. The solution is accepting that there is not one answer for diagnosis and treatment b/c of the variability in Lyme presentation. And has there ever been Lyme and co-infection treatment studies in the USA? Hard to cohort patients because of the variability in presentation and difficulty in tracing back to see how long someone has been infected, and what tick-borne illness(es) they have, and type of immune system dysfunction that may have developed while searching for medical answers, etc…

    CDC… It's time that you at least put the ILADS Guidelines on your website and consider removing guidelines from 2006 as the primary source of disease and treatment information. At least show all science instead of choosing 1 view and omitting another. Does everyone know the ILADS guidelines (2014?) are included and IDSA 2006 have been removed from the Institute of Medicine Guideline Clearinghouse for good reason? Yet the CDC keeps those 11 year old guidelines on their website… and BTW – That's when they were published… the science in the IDSA guidelines was done prior to 2006 to allow for publication.

    To the gentleman in the video, Robert. I am super thankful that your real diagnosis was made and I am disturbed that it took as long as it did. I hope you are doing well!

  58. You can only lie for so long CDC. There's a reason you are accepting little to no interviews with people about chronic Lyme disease. It's because you know sooner or later you're going to be exposed on a main stream level, and then you're going to pretend you had some sort of "study" that makes you believe in chronic Lyme when you knew all along. And as far as getting a second opinion regarding Lyme disease I DID and spoiler alert it wasn't from a doctor who follows your false guidelines.

  59. I recommend Lyme sufferers to Report this video and tick the "Harmful.." option. This is absurd propaganda and should be removed. A ridiculously stupid diagnostic process, that this poor guy happened to have, is being used to belittle true Lyme PATIENTS!

  60. Why on earth does the medical community refuse to accept that Lyme can stay in your body longer than a short round of antibiotics?

  61. normally you would get an mri before even getting a test allowed for lyme? this is only one persons story…

  62. This is a perfect example of bullying people to death. This video is the first link on the CDC's page for Lyme Disease guidelines. It's a single account of a misdiagnosis and should not be the first listing doctors look at when looking up guidelines. You would not believe how hard it is to get help for this life threatening disease. Just look at all the videos from personal accounts here on Youtube.

    Please help flag this video for bullying.

  63. The fact that the CDC only has four case reports of Lyme carditis on their website tells you that they are woefully out of touch with the medical community treating Lyme patients, and Lyme sufferers in particular. The reliance on incidental reporting and retrospective chart review does a disservice to those struggling with the disease. The lack of intellectual curiosity and reliance on infectious disease "experts," who have a vested interest (i.e. research publications) in maintaining the status quo is appalling. The CDC  relied on those same "experts" who assured them that standard isolation garb for RN staff was fine when treating Ebola patients, when in actuality many of those "experts"  had never treated an Ebola patient and were clearly wrong. Just ask the RNs who contracted it. Where is the independent laboratory research and funding? CDC is a mess.

  64. Anecdotal, n=1. This is not a story of chronic lyme but rather that of an incompetent doctor. Not even a causual mentioning of laboratory blood work…complete garbage

  65. why does the CDC work so hard at trying to deny Chronic :Lyme when so many studies show the existence of same and the existence of Lyme biofilms and the survival of lyme spirochetes after anti biotic treatment? does anybody know what their agenda is for denying what is so obvious.

  66. I don't understand how the CDC continues to SPREAD Lyme disease instead of accepting the hundreds of studies in human and animal models that show Lyme 100% persists. Its really just the basic pathophysiology of Lyme, you don't need to be a microbiologist to understand how it works you just need to be able to read some studies that establish it… the CDC is really off here

  67. SERIOUSLY???? WHEN WILL YOU STOP THIS???? CHRONIC LYME IS REAL AND MOST PEOPLE ARE NOT CURED BY ANTIBIOTICS!!!!

    THERE ARE MANY THING THAT WILL HELP CHRONIC LYME, DO NOT PUT THE IDEA THAT THEY DONT HAVE LYME INTO OUR HEADS BECAUSE SOME PEOPLE THEN WONT KEEP FIGHTING AND LOOKING FOR TREATMENTS!!!!

    ASK FOR EVERY LYME TEST IF YOU GET A NEGATIVE OR IF THEY DENY YOU TESTING AND IF THEY SAY NO, GO TO A DIFFERENT DOCTOR THAT ACTUALLY CARES ABOUT YOU AND WILL DO THE SECONDARY TESTINGS.

    THE CDC DOESNT EVEN WANT YOU TO KNOW ABOUT THESE TESTS BUT THEY DO EXIST!!!! THIS IS ALL PROVEN AND THEY KNOW IT.

    THIS IS KILLING US!!!! STOP IT NOW!!!! DO YOU WANT US TO KEEP DYING????

  68. "Chronic Lyme Disease" is a total hoax. The quacks diagnosing this should have their medical lisceses revoked. I was also diagnosed with "Lyme" by a practitioner who wanted to put me on extended antibiotic treatment. Thankfully I was skeptical enough to get another opinion. There are so-called physicians who make it their entire career to diagnose virtually anyone who sets foot in their doors with Lyme Disease. Because it is actually a real infection, it seems to have some credibility, but do not accept it. They will take your blood and tell you they found the bacteria in it, but it's a scam. Go to a legitimate M.D. and get a Western Blot test as this is the true way to get a diagnosis. Extended antibiotic treatment is so dangerous. If you are suffering physically and mentally for so long with no resolution, you will eventually find someone who will diagnose you with this "disease" and it can feel like a relief to finally have a diagnosis, but you are being taken advantage of because you are vulnerable. I hope that everyone that is suffering out there can find peace and healing, but please don't let yourself be harmed by the scam that is "Chronic Lyme Disease".

  69. What is really strange in this story is why the expert doctors Robert has seen, didnt rule out cancer first but only after so many suffering, and instead rulled out Lyme? One thing that CDC fails to point is that the Antibiotics is a treatment recommended for many diseases and infections and that many people treat the infections but die from antibiotics that are aproved by FDA and recommended by CDC them selfs?

  70. HE PROBABLY STILL HAS LYME AND THERE IS NO DEFINITIVE WAY TO PROVE THAT THE ANTIBIOTICS CAUSED THE REST OF HIS HEALTH ISSUES!

  71. What test was given to this man? Why was a dr willing to give him iv antibiotics. Lyme doctors, llmd, don’t just put in a line and give people iv abx. People can ask others with Lyme if a particular Doctor is a good choice. If the sanctioned test did not fail so often, this guy would have known if he had Lyme or not.

  72. This video was at the top of search results from a search filtered by “today” on
    March 18, 2019. Please share comments so new potential Lyme victims can gain more info.

  73. Oh, heavens. The internet has turned so many people in "experts" in things like chronic Lyme. There's a term for that: the Dunning Kruger effect. I wonder what would happen to this Lyme epidemic if patients only sought out actual Lyme specialists… fellowship trained infectious disease doctors… and not the snake oil salesmen that are currently out there.

  74. Or maybe your doctor says nah….. your first test was negative…. then months later as you get sicker and sicker you have another series of tests done and they are all positive . Shame on the CDC for not diagnosing and treating this horrible disease and it’s many co-infections appropriately

  75. hahahhahaha yes its not lyme disease. Based on the fact that your physicians wouldnt even give me antibiotics when i came in with a bullseye rash and was told I have bronchitis

  76. I think the CDC is far more concerned with the problem of antibiotic resistance than the personal experiences of what people with lyme disease go through trying to get well.

  77. Just one way of how CDC disregard the suffering of many suffering from Lyme….how sad….crime against humanity!

  78. FDA-cleared fully validated tests? The ones that provide false negatives more than half the time? Less reliable than a coin toss? The tests that give false Negatives that are used by doctors the CDC has ensured are ignorant about the false negative probability? The failed testing that ensures that Lyme patients go years without diagnosis so that they become immune deficient, leading to disability, excruciating existence, and potentially to cancer, just like the guy in the video has- do a ten year follow up on that guy to see if he still has Lyme- and use a valid test, not the CDC/FDA false negative test that enabled the first vaccine to be distributed and appear successful.

  79. Is Lyme disease a biological weapon? Look into secret Government programs using ticks as agents in spreading biological agents, such as the altered Borrela bacteria, then released in New Jersey in the late 50s or early 60s.

  80. What I love is CDC logic. You have confirmed lyme disease and have a set of symptoms. So you are given 4 weeks doxy (CDC/IDSA treatment paradigm), and if you aren't better and still have the same set of symptoms it is now ascribed to a new disease, a magical thing they call PTLDS! the somersaults of logic are quite impressive and inexplicable. Especially given the fact they can't prove the organism has been eradicated from the body yet they claim categorically that this is so (how does one adequately test for an immuno-evasive organism if it holes up in tissues like the brain with antibody based testing?). Not to mention the various coinfections that are often compounding factors in the more serious cases. If you have established infections, god forbid you rely on CDC protocol, it may be adequate if you've just been inoculated with borrelia, but beyond that it likely won't make a dent.

  81. This is a disgrace. I’ve been suffering with Lyme for 18 months, diagnosed with a blood test. He says people need to be more knowledgeable about Lyme Disease. Yes sir, you’re correct.

  82. It is SO possible to have Lyme disease AND a tumor. The title of this video is very misleading. Where are our studies and treatment options for "Post Treatment Lyme Disease Syndrome"? Why have there been no improvements in the 36% failure rate for Lyme disease treatment? What are patients who have failed treatment and have clear MRI scans to do?

  83. Or maybe it IS lyme disease. Maybe you all should subscribe to my channel and see how much of a hard time I have walking and all of the things I need to now survive as a chronically disabled person. Ok and, watch me struggle to get around and how I need the use of mobility aids. Thank-you for ignoring our plight and turning your back on us.

  84. Thanks for this video about Robert's doctors, supposedly the best in the world in America, not listening to their patient and instead misdiagnosing him and treating him for diseases he didn't have. I would love to see a follow up video of one of the many people whose chronic lyme symptoms went away after being treated by a lyme literate doctor. Be sure to put in the part where they get misdiagnosed 5 or 10 times and told they are psychotic.

  85. I can’t believe they suggest to only use an fda approved test, those are the tests that are usually wrong! Go to igenex that actually test for the bacterium, not just the antibodies!

  86. Chemo drugs ARE antibiotics!! (Very very strong ones, too…) all infections are treated with antibiotics…. cancer is obviously an infectious disease as it spreads…. many many cancers are PROVEN to be caused by bacteria, just look up stomach cancer and hpylori and look up gardisil vaccine for cervical cancer!! I wish they’d be honest…

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