Matinum

Taking Charge of Your Health


Jackson was diagnosed with Duchenne
Muscular Dystrophy at five years old. Diagnosis day is the worst day of any
family’s life. Duchenne Muscular Dystrophy, it’s programmed to,
unfortunately, caused great disability. By the time kids get to be teenagers
they’re stuck in a wheelchair. Childhood disease is one thing but rare
disease, that’s a whole another bucket of challenges. The only way you’re
gonna bring attention to that is do something big. This was one of those
times. There is not an 11-year-old boy with
Duchenne Muscular Dystrophy that has run a marathon. And for Jackson anything
is possible. One way or the other we can make anything possible. It was an
idea that’s sprang out of a couple people involved with patients, to be part
of the relay team that took Jackson all the way through 26 miles. When they told
me that Dr. Mendell and Dr. Flanagan were gonna be part of that team I thought wow… this
has really inspired a lot of people. Jackson is definitely a symbol of this
team and this hospital’s devotion to our kids. It’s not just a job. This was all
organized on weekends and evenings and people were practicing on the weekends.
And then on race day I wasn’t expecting it to be so emotional. I think he loved
seeing everybody on the sidelines cheering for him. It really made me think
about how I needed to step back and this is his journey. Seeing him come down and
everybody on the sides are cheering for Jackson, it was just unbelievable. The very best part of the day was the finish. The last
hundred yards or so when he looked up at me and said, “Do you think people will go
crazy when I cross the line ?” And then as we came into the finish everyone did go
crazy. I think why I got so emotional was because when I was standing at the finish line, I just saw this sea of red t-shirts. This huge group of runners pushing my child at the front of them. And I thought wow what a powerful
message. Nationwide Children’s Hospital is a world’s leading expert in research and
care for this disease. To be from Columbus and have that right here in our
backyard has been such a blessing to us.

2 thoughts on “Marathon Miracle: Boy with Duchenne Muscular Dystrophy Crosses Finish Line

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