Taking Charge of Your Health

I’m gonna dip my hand in freezing cold water for a couple of minutes and see if it does in fact turn into Raynaud’s phenomenon Hey guys, so today I just wanted to make a quick video talking about Raynaud’s phenomenon So a lot of people pronounce this “raynards” “raynods” “raynodes” or “raynose” I don’t really know which one’s correct. I think technically “raynose” is correct You kind of like drop that “D” and say “o”, but I just say “raynodes”, so Yeah, sorry, you say something different and if I’m saying it wrong, so I do have Raynaud’s phenomenon But I don’t have it that badly. I have it Sometimes worse than others obviously and I it’s a big sign that winter is coming And so I’ve had it I think two or three times this week and that’s the first time I’ve had it mainly this whole summer It’s a lot worse in the winter And if you don’t know what Raynaud’s phenomenon is, it’s this thing if that happens to your toes and to your fingers for me It’s really just my fingers and it’s spasming of these blood vessels and your fingers that causes constriction of blood flow and then oxygen To your fingertips and it typically happens in the cold Sometimes in the hot. Oftentimes it’s just a change of temperature. It’s really common in autoimmune diseases I don’t have an autoimmune disease, but I do have a type of dysautonomia and it’s also common in dysautonomia It’s also common with like thyroid issues I think like hypothyroidism and there are other hormonal things that cause it and other factors as well these are just some of the really common causes also, sometimes it’s not secondary to another condition and it can just be Itself, and it doesn’t necessarily mean that it’s a big problem, but for me, it is painful for some people It’s not for some people it is and it can be indicative of another condition so like maybe it’s important to check out I guess if you are experiencing this but Yeah, it’s just something I know I have. So I’m basically I’m gonna dip my hand in freezing cold water for a couple of minutes And see if it does in fact turn Into Raynaud’s phenomenon. Oh, and I also totally forgot to explain what it is. It’s like It turns your fingers white. It can be purple and I can be red. It’s sort of like these three different phases actually I’ll just take my hand in watch out. Oh, that’s cold Wow. Hello and It’s like it’s white when there’s that constriction of blood flow. It’s blue. Oh my god, that’s cold That’s colder than I thought it was gonna be oh That’s nicely painful. Okay It’s blue when it’s like low on oxygen And then it’s red when like the blood flow returns. What am I doing? Oh my gosh Why did I put ice in here. I have to take it out. It’s like hurting me. I don’t think I’m gonna get Raynaud’s from this. Oh jeez. Oh my god. Oh, that’s rough Ow See, this is what I don’t get. Every one in a while when I have cold water on my hand it like all like the pain extends All the way up to my elbow and it’s painful a lot of the times it’s not. This is clearly something’s going on. Okay, Wow, what the fudge? Oh It’s not even my hand that hurts, it’s my forearm now. Okay, this is not Raynaud’s This is just me being dramatic. But to be honest, I am serious. This really hurts right now and I don’t know why okay Whatever so, yep, let me just go I’m actually gonna do this experiment with less cold water. So, excuse me. There we go Just like a nice typical cold water. You know, not one with ice. There we go. There we go This is like when you turn the faucet on and you’re like, oh, that’s cold. We’ll make it hotter This is not like holy shit. Like chop my hand off, please. Okay, I’m dramatic. I’m a dramatic person So, let’s see if it does turn white. I know when I’m filming It probably won’t it’s also not like I feel like you know what I mean it’s like right when you want to show something it doesn’t work but also it’s not wintery at the moment but uh It’s I don’t know. I feel like there’s like certain conditions When I’m like more prone to actually experience it So like towards the end of the day When I’ve been experiencing blood pooling like throughout the day just not that moment. I’m more likely to get it that day I don’t know. There’s like predisposing times. I guess. I really don’t know Okay. So right now I am not experiencing Raynaud’s at all. This is totally normal. So why don’t we stick it in some hot water and See if anything happens. This is like, you know, the return of blood flow that feels so nice. That’s not like hot It’s a little warm. Oh, I’m like feeling tingles in one of my fingers. Like I feel like blood is like hanging out there Okay, I sound so weird. I’m so sorry I’m like a little hyper and I do want to say like Raynaud’s is pretty painful sometimes other times It’s not that painful, but it’s okay. The number one worst condition. Oh, my mom gets it too – The worst condition for me is the same worse condition that it is for my mom which is when it’s cold outside and it’s raining That is the absolute worst and I’m holding an umbrella. Oh My god, you know hurts so badly. I just can’t even okay. Oh my god, this feels so good Okay, I mean Potential- a smidgen maybe a smidgen so I mean it there’s nothing that’s happening Oh, this is like a smidgen red so I think it makes it look like maybe I have some right there But I don’t like this is not at all right now. It’s like it’s not painful. It’s just this is just my normal hand. Um So I guess it just didn’t work right now, but that’s totally expected. I mean, it doesn’t happen every single time But it does tend to happen a lot in the winter. The winter is horrible If you have Raynaud’s, and it definitely gets really really painful sometimes Anyway, maybe I’ll try this again another time, but honestly, I think you get the picture even if it didn’t happen in this circumstance And I don’t know, if I were to give you something some some good tips for what to do when you have Raynaud’s, hand warmers in your pocket so good – the ones you can reuse, they’re just really good and I mean gloves that’s an obvious one, but like gloves don’t really work all the time like your hands still freezing like Crazy freezing and I could still get Raynaud’s through my gloves. I get it all the time through my gloves Yeah, mainly hand-warmers – that’s my advice. Alright, Anyway, I hope you enjoyed this video even though my experiment did not work, but it’s fine So I’ll see you guys in the next video. Bye

51 thoughts on “Raynaud’s Phenomenon

  1. Yes I have Raynauds! It’s like I hate the cold because of Raynauds but I hate the heat because of POTS. You can’t win 😂

  2. This happens to me soooo much! Also my finger joints get really stiff when it’s cold and I have a hard time using my hands it’s super annoying.

  3. I have had a hard time in the winter. My feet can get frozen very easily in the winter. It can take me longer and if it is cold enough my hands can feel like this. I like how your videos help bring education and awareness that most medical professionals never will tell you about. It seams like they never have the time to really talk to you at your doctors appointment's. I even when I am not hot or cold can have times out of the blue where an area for example my arm or leg can start to itch. I will scratch that area and for a split second it will start feeling better but within another split second it will hurt. This can take a few seconds or a few minutes to go away, it is very random. Thank You for your videos. I think I have this but I will pay more attention next time I am in the cold.

  4. I CANNOT HANDLE icing anything. It is EXTREMELY painful for me. And when I did the tilt table test the poor nurse kept filling up gloves with hot water for me to hold because my hands are/were always freezing and they would not warm up during the test no matter what. She was quite surprised and it seemed like she hadn’t seen that before (& she has been doing tilt table testing for a LONG time). My hands don’t turn too dark of a color, if anything they get very pale.

  5. That was a little too extreme with the ice water!! It made me laugh. I hope it was meant to be funny. Incidentally, your knee looks like it healed up really well. I'm looking forward to an update on the progress after your knee surgery.

  6. HYperflexor here and my fingers under my nails goes purple in cold weather, and then my feet go purple too. and yeah the pain is bad when its cold and then if u have a bath to warm up then it burns as the feeling comes back. IMD yes my joint pain is so much worse when its wet and cold, even if its going to rain. Warmingup slowly tips bean bags, those small cushions coz they give you your own heat back rather than big hit of temperature changes 😉

  7. Swearing is fine, it helps us tollerate higher pain levels for longer. fave alternative phrase I recently heard. What the fish loving hell.

  8. Hey, Izzy girl you are so hilarious. Yes, my hubby uses those hand and foot warmers in the winter months. They work a little bit but, he still says his hand is freezing. About 3 yrs ago he got touch of frostbite on his hand. So, his doctor says not to be out in the cold no longer than 15 mins at a time. Now, I time him when he's moving the snow from the walkway or driveway. Have a wonderful day, Izzy. ☺ ☺

  9. I have EDS. Thanks to your channel myself and girls now know what's wrong with us. 😊
    I do not have Raynauds but my hands cannot tolerate cold at all.

  10. my dr thinks i have it but idk how you like diagnose it he never brought it up i see him tusday and im kinda tempted to see if he can dignose it but i might wait since hes working on the genestisus right now for eds so i think one thing at a time is best but how did u get dignosed

  11. Your too funny. Yes so painful. I use rechargeable hand warmers, live safer. Hit in an instant and always ready to go! Great for pinpoint pain and dry eye treatments too!

  12. I have crazy reynauds in my feet and nipples(yes nipple reynauds exists lmao) and mildly in my hands. I also have an autoimmune disease.

  13. Hey Izzy! My dad and I both get the phenomenon, and my dad actually has a theory that it happens more when your core (body/abdomen) gets a chill rather than when your limbs get cold. He thinks it’s like the body over reacting to the cold and saying “oh no we need to conserve all of the blood flow and heat for the heart, time to sacrifice the digits”. I tend to agree with it because I’ve noticed it’ll happen to me in my feet even though i have heavy boots and two layers of socks on, but I’m not wearing enough layers under my coat. Maybe this will help with your next experiment. (;

  14. Cold makes my entire body hurt so bad especially my fingers. I live in a very humid climate that gets very cold in the winter and it is brutal. My husband does have raynauds in his toes. His toes can turn in the middle of summer or winter.

  15. My advice for people with Reynaud's is to wear wool socks and wool gloves! Even when I wear three pairs of gloves and three pairs of socks, with the top layer being wool, I will still get Reynaud's when it's cold enough, but when it's above 10 degrees wool gloves and wool socks are usually enough to keeps my hands and feet warm. Also, earmuffs and/or a crocheted headband are a must to keep my ears warm. Gloves should be worn anytime it's under 60 degrees, even if it doesn't feel that cold out. I've had a finger go numb and turn white when it was 50 degrees and didn't even feel cold out, and it's happened on more than one occasion. I'll wear one, two, or three pairs of gloves depending on how cold it is. But my best piece of advice is to wear wool gloves and wool socks! They help SO much. When it's 30 degrees and I wear my wool gloves on top of two regular pairs of gloves, my hand will usually stay warm and cozy. Same with my feet. I have a pair of boots and a pair of tennis shoes that are two shoe sizes bigger than what I normally wear, so I'll be able to wear them with three pairs of socks in the winter. Wool is what helps the most! (Also, I've found the best thing to do when your fingers go numb is to exercise–I will run until the blood comes back into my fingers. They say running your hands under hot water is the best thing, but I've found that to be extremely painful, and I personally find running (even if it's running back and forth in your hallway) until the blood comes back into my fingers is the best way.) However, if you wear enough pairs of gloves and wear wool gloves, this shouldn't happen to you. Wool is a lifesaver!

  16. My mom and I have a lot of the same type of things as you. But not as each other lol. I have POTS and JHS and possible EDS. She has Raynaud’s phenomenon and gastrointestinal problems that are yet to be figured out, that’s getting really bad..

  17. Your reaction. Every time I'm on a hike and have to wash my hands in the bathrooms on the mountain with ice cold water. So painful. Why does it hurt all the way up? So weird. I cringed for you. You're brave. There's no way I would do that. Cold is way too painful for me.

  18. My Dr. had me get snow from outside to do a test on me, lol 😂 but yeah, I don’t have anything else but this in my hands and feet when I’m cold:)

  19. I never knew this had a name I’m a competitive swimmer and this has been happening almost all my life😂😂 it’s how I know my asthmas acting up during a workout haha

  20. When I go to Starbucks for a frappe, I have to get a hot drink sleeve for my cold cup or I can't hold it. I was told at first I didn't have Reynauds, then when I saw my neurosurgeon in January, he ran some basic tests and assured me that I wasn't crazy, that I do in fact have Reynaud Syndrome. It affects my hands and feet.

  21. Raynaud's affects me with cold AND heat, and so does POTS. I also have a similar thing going on with part of my face going to the back of my head. I forget what it's called (technically beginning at the sinus). Apparently, they're related, but they're not sure exactly how.
    And yes, I get the Raynaud's through gloves, and through socks and shoes or boots.

  22. Hi Izzy! I was just wondering if there's anyway you can add subtitles/captions to your videos? I'm hard of hearing and the auto-generated ones might as well not be there cause they're just awful 😂😂

  23. For me it’s just the toes. Once my blood flow cut off right in the middle of my PE class… Like why? 😂 Gotta love it

  24. like the feeling I get through this …. my hand becomes pale and numb and numb mainly. ….it kinds of reflects how pain at a whole really feels to me …. I remember when I started to show signs of this as a result of the emerging chronic illness…. I said to the doctor that my hands hurt when I touch it and push my fingers on the trigger points .. he told me everyone does feel pain if you push!! :))) … But I didn't feel it hurts before that. for a long time they wanted to ignore that hurt exists.. I find it difficult to forget how I (like many others) were ignored until getting to know what is really happening..

  25. My mum has raynauds and I haven't been diagnosed but I have it too. I'm pretty sure I have hEDS but no doctor is listening. I hate the cold it makes my feet and hands hurt so much and I get chilblains , every winter which are awful!

  26. 3:00 That's kind of what I was wondering already when this video started.

    Your experiment may not have worked the way you hoped it would, but your video is still informative.

  27. I remember my mom and I sitting out in the cold selling Girl Scout cookies. We'd use the one-use hand warmers. My hands would suck all the warmth out of them and then I'd have to trade with my mom for hers. We would just keep trading back and forth–they would warm back up again in her pockets/gloves.

  28. I am a 17 year old teenage girl and I’ve had raynauds for a while like maybe since 2 or more years ago. It’s just my hands get dry and cracked in the winter when it gets colder and they sting a lot and certain types of hand cream sting my hands. I even sometimes can’t tell the difference between not damp and damp clothes. It’s just really annoying and frustrating.

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